The HudsonAlpha Institute for Biotechnology and Huntsville Track Club (HTC) will host the first Virtual Double Helix Dash 5K. The health crisis stemming from COVID-19 coronavirus continues taking its toll, but we found a way to keep the race alive. Here’s how it works:
The Double Helix Dash supports childhood genetic disorders research at HudsonAlpha, which is providing answers – and hope – to families across Alabama, like Violet Monson of Montgomery, AL. Violet is this year’s Childhood Champion.
She was diagnosed with Rett syndrome through HudsonAlpha’s Clinical Sequencing and Exploratory Research (CSER) project, which works to diagnose children with unexplained developmental delays through the use of genomic sequencing.
“D-Day” (Diagnosis Day) for Violet was May 12, 2016. After months of waiting in between doctors appointments – sometimes six months – it was on this day that her parents Matt and Mandy finally learned a name for their daughter’s condition, Rett syndrome. Rett syndrome is a rare neurological disorder affecting 1 in 10,000 girls across the globe.